[HTML][HTML] Rare diseases and space health: optimizing synergies from scientific questions to care
…, J Mitchell, M Osmond, E Urquieta, J Flamenbaum… - npj …, 2022 - nature.com
Abstract Knowledge transfer among research disciplines can lead to substantial research
progress. At first glance, astronaut health and rare diseases may be seen as having little …
progress. At first glance, astronaut health and rare diseases may be seen as having little …
[HTML][HTML] Core elements of participant consent documents for Canadian human genomics research and the National Human Genome Library: guidance for policy
H Longstaff, J Flamenbaum, E Richer, J Egar… - CMAJ, 2022 - Can Med Assoc
• This guidance for policy proposes a core set of elements for documents used to obtain
participant consent for human genomics research in Canada.• The core set of elements …
participant consent for human genomics research in Canada.• The core set of elements …
Research Ethics Review of Patient-Oriented Research: Perspectives of Researchers and Research Ethics Boards
DP Richards, D Corno, S Dastouri, J Flamenbaum… - 2023 - osf.io
Background: Patient-oriented research (POR) incorporates patient partners as members of a
research team. With the strengths and challenges of POR starting to emerge, one challenge …
research team. With the strengths and challenges of POR starting to emerge, one challenge …
Ethics in the science lifecycle: Broadening the scope of ethical analysis
K Allen, J Flamenbaum - Knowledge translation in health care, 2013 - Wiley Online Library
This chapter offers a simple framework to help structure thinking about ethics considerations
in the lifecycle of scientific research. Drawing on the work of an earlier research, the authors …
in the lifecycle of scientific research. Drawing on the work of an earlier research, the authors …
A critique of the biomedical model: the clash between physician and patient expectations
J Flamenbaum - 1999 - escholarship.mcgill.ca
During my professianallife as a physician and during the elaboration of this dissertation, 1had
the opportunity to meet, read and study many dissenting vaices about the current status of …
the opportunity to meet, read and study many dissenting vaices about the current status of …
[BOOK][B] Knowledge translation in health care: moving from evidence to practice
Knowledge Translation in Health Care is a practical introduction to knowledge translation
for everyone working and learning within health policy and funding agencies, and as …
for everyone working and learning within health policy and funding agencies, and as …
Pre-implantation genetic diagnosis: the road forward in Canada
The use of pre-implantation genetic diagnosis (PGD) is increasing as the list of indications it
can test for constantly expands. This raises new challenges for clinicians and prospective …
can test for constantly expands. This raises new challenges for clinicians and prospective …
[HTML][HTML] Éléments fondamentaux des documents de consentement à participer à la recherche sur le génome humain au Canada et de la Bibliothèque génomique …
H Longstaff, J Flamenbaum, E Richer, J Egar… - CMAJ, 2022 - Can Med Assoc
• Cet ensemble d’éléments fondamentaux contient l’essentiel requis pour s’ assurer d’une
mobilisation appropriée de la part des personnes participantes et du personnel en …
mobilisation appropriée de la part des personnes participantes et du personnel en …
Ethics in neuroscience graduate training programs: Views and models from Canada
S Lombera, A Fine, RE Grunau… - Mind, Brain, and …, 2010 - Wiley Online Library
Consideration of the ethical, social, and policy implications of research has become increasingly
important to scientists and scholars whose work focuses on brain and mind, but limited …
important to scientists and scholars whose work focuses on brain and mind, but limited …
[HTML][HTML] Canada's Assisted Human Reproduction Act: pragmatic reforms in support of research
Canada’s Assisted Human Reproduction Act is long overdue for Parliamentary review. We
argue that the current regulation of research using human reproductive materials is not …
argue that the current regulation of research using human reproductive materials is not …