[HTML][HTML] Rare diseases and space health: optimizing synergies from scientific questions to care

…, J Mitchell, M Osmond, E Urquieta, J Flamenbaum… - npj …, 2022 - nature.com
Abstract Knowledge transfer among research disciplines can lead to substantial research
progress. At first glance, astronaut health and rare diseases may be seen as having little …

[HTML][HTML] Core elements of participant consent documents for Canadian human genomics research and the National Human Genome Library: guidance for policy

H Longstaff, J Flamenbaum, E Richer, J Egar… - CMAJ, 2022 - Can Med Assoc
• This guidance for policy proposes a core set of elements for documents used to obtain
participant consent for human genomics research in Canada.• The core set of elements …

Research Ethics Review of Patient-Oriented Research: Perspectives of Researchers and Research Ethics Boards

DP Richards, D Corno, S Dastouri, J Flamenbaum… - 2023 - osf.io
Background: Patient-oriented research (POR) incorporates patient partners as members of a
research team. With the strengths and challenges of POR starting to emerge, one challenge …

Ethics in the science lifecycle: Broadening the scope of ethical analysis

K Allen, J Flamenbaum - Knowledge translation in health care, 2013 - Wiley Online Library
This chapter offers a simple framework to help structure thinking about ethics considerations
in the lifecycle of scientific research. Drawing on the work of an earlier research, the authors …

A critique of the biomedical model: the clash between physician and patient expectations

J Flamenbaum - 1999 - escholarship.mcgill.ca
During my professianallife as a physician and during the elaboration of this dissertation, 1had
the opportunity to meet, read and study many dissenting vaices about the current status of …

[BOOK][B] Knowledge translation in health care: moving from evidence to practice

SE Straus, J Tetroe, ID Graham - 2013 - books.google.com
Knowledge Translation in Health Care is a practical introduction to knowledge translation
for everyone working and learning within health policy and funding agencies, and as …

Pre-implantation genetic diagnosis: the road forward in Canada

V Ravitsky, MT Nguyen, S Birko, E Kleiderman… - Journal of Obstetrics and …, 2019 - Elsevier
The use of pre-implantation genetic diagnosis (PGD) is increasing as the list of indications it
can test for constantly expands. This raises new challenges for clinicians and prospective …

[HTML][HTML] Éléments fondamentaux des documents de consentement à participer à la recherche sur le génome humain au Canada et de la Bibliothèque génomique …

H Longstaff, J Flamenbaum, E Richer, J Egar… - CMAJ, 2022 - Can Med Assoc
• Cet ensemble d’éléments fondamentaux contient l’essentiel requis pour s’ assurer d’une
mobilisation appropriée de la part des personnes participantes et du personnel en …

Ethics in neuroscience graduate training programs: Views and models from Canada

S Lombera, A Fine, RE Grunau… - Mind, Brain, and …, 2010 - Wiley Online Library
Consideration of the ethical, social, and policy implications of research has become increasingly
important to scientists and scholars whose work focuses on brain and mind, but limited …

[HTML][HTML] Canada's Assisted Human Reproduction Act: pragmatic reforms in support of research

T Bubela, E Kleiderman, Z Master, U Ogbogu… - Frontiers in …, 2019 - frontiersin.org
Canada’s Assisted Human Reproduction Act is long overdue for Parliamentary review. We
argue that the current regulation of research using human reproductive materials is not …