User profiles for Robyn Rowe
 | Robyn K RowePost Doctoral Fellow at Queen's University Verified email at queensu.ca Cited by 973 |
The CARE principles for indigenous data governance
…, D Rodriguez-Lonebear, R Rowe… - Data science …, 2020 - research.ed.ac.uk
Concerns about secondary use of data and limited opportunities for benefit-sharing have
focused attention on the tension that Indigenous communities feel between (1) protecting …
focused attention on the tension that Indigenous communities feel between (1) protecting …
Implementing high-quality primary care through a health equity lens
The COVID-19 pandemic highlighted the importance of centering health equity in future
health system and primary care reforms. Strengthening primary care will be needed to correct …
health system and primary care reforms. Strengthening primary care will be needed to correct …
Describing the process of ethical conduct of research in an Ontario-wide First Nations diabetes research project
We also prioritized communitylevel involvement, and our proj ect was informed by communitybased
participatory research approaches5 and principles of Indigenous data sovereignty, 4…
participatory research approaches5 and principles of Indigenous data sovereignty, 4…
[HTML][HTML] Fostering global data sharing: highlighting the recommendations of the Research Data Alliance COVID-19 working group
…, F Psomopoulos, S Rennes, R Rowe… - Wellcome open …, 2020 - ncbi.nlm.nih.gov
This has been updated to clarify interested parties. Introduction- Paragraph two has been
updated to discuss the methodology in developing the document; a new paragraph has been …
updated to discuss the methodology in developing the document; a new paragraph has been …
[HTML][HTML] Indigenous peoples' data during COVID-19: from external to internal
Global disease trackers quantifying the size, spread, and distribution of COVID-19 illustrate
the power of data during the pandemic. Data are required for decision-making, planning, …
the power of data during the pandemic. Data are required for decision-making, planning, …
Identifying and understanding the health and social care needs of Indigenous older adults with multiple chronic conditions and their caregivers: a scoping review
Background Indigenous people continue to experience high rates of multiple chronic conditions
(MCC) at younger ages than other populations, resulting in an increase in health and …
(MCC) at younger ages than other populations, resulting in an increase in health and …
The commercialization of patient data in Canada: ethics, privacy and policy
S Spithoff, J Stockdale, R Rowe, B McPhail, N Persaud - CMAJ, 2022 - Can Med Assoc
• In Canada, commercial data brokers collect deidentified patient data from pharmacies,
private drug insurers, the federal government and medical clinics without patient consent.• …
private drug insurers, the federal government and medical clinics without patient consent.• …
[HTML][HTML] Indigenous peoples' rights in data: a contribution toward indigenous research sovereignty
Indigenous Peoples’ right to sovereignty forms the foundation for advocacy and actions toward
greater Indigenous self-determination and control across a range of domains that impact …
greater Indigenous self-determination and control across a range of domains that impact …
[PDF][PDF] Indigenous self-determination and data governance in the Canadian policy context
In 2015, Canada’s 23rd federally elected Prime Minister, Justin Trudeau, took the nation’s
stage and vowed to make reconciliation with First Nations, Inuit, and Métis—the three distinct …
stage and vowed to make reconciliation with First Nations, Inuit, and Métis—the three distinct …
[HTML][HTML] The SEEDS of Indigenous population health data linkage
Objectives Centering IPH data linkage and research priorities at the conference led to budding
discussions from diverse Indigenous populations to share and build on current IPH data …
discussions from diverse Indigenous populations to share and build on current IPH data …
