Establishing psychosocial palliative care standards for children and adolescents with cancer and their families: An integrative review
MS Weaver, KE Heinze, CJ Bell, L Wiener… - Palliative …, 2016 - journals.sagepub.com
Background: Despite standardization in disease assessments and curative interventions for
childhood cancer, palliative assessments and psychosocial interventions remain diverse …
childhood cancer, palliative assessments and psychosocial interventions remain diverse …
Barriers to accessing palliative care for pediatric patients with cancer: A review of the literature
ER Haines, AC Frost, HL Kane, FS Rokoske - Cancer, 2018 - Wiley Online Library
Although many of the 16,000 children in the United States diagnosed who are with cancer
each year could benefit from pediatric palliative care, these services remain underused …
each year could benefit from pediatric palliative care, these services remain underused …
[HTML][HTML] Symptoms and distress in children with advanced cancer: prospective patient-reported outcomes from the PediQUEST study
Purpose Thousands of children are living with advanced cancer; yet patient-reported
outcomes (PROs) have rarely been used to describe their experiences. We aimed to …
outcomes (PROs) have rarely been used to describe their experiences. We aimed to …
The support needs of parent caregivers of children with a life-limiting illness and approaches used to meet their needs: a scoping review
FJ Gill, Z Hashem, R Stegmann… - Palliative …, 2021 - journals.sagepub.com
Background: Provision of paediatric palliative care is complex and optimally covers meeting
the individual needs of a heterogenous population of children and their parent caregivers …
the individual needs of a heterogenous population of children and their parent caregivers …
[HTML][HTML] End-of-life care patterns associated with pediatric palliative care among children who underwent hematopoietic stem cell transplant
CK Ullrich, L Lehmann, WB London, D Guo… - Biology of Blood and …, 2016 - Elsevier
Stem cell transplantation (SCT) is an intensive therapy offering the possibility of cure for life-
threatening conditions but with risk of serious complications and death. Outcomes …
threatening conditions but with risk of serious complications and death. Outcomes …
Palliative care for children with cancer
E Waldman, J Wolfe - Nature reviews Clinical oncology, 2013 - nature.com
Over the past two decades, paediatric palliative care has emerged as both a primary
approach and as its own medical subspecialty, the overall aim of which is to ease suffering …
approach and as its own medical subspecialty, the overall aim of which is to ease suffering …
Using the threshold technique to elicit patient preferences: an introduction to the method and an overview of existing empirical applications
Patient preference information (PPI) is a topic of interest to regulators and industry. One of
many known methods for eliciting PPI is the threshold technique (TT). However, empirical …
many known methods for eliciting PPI is the threshold technique (TT). However, empirical …
Approaching the third decade of paediatric palliative oncology investigation: historical progress and future directions
AR Rosenberg, J Wolfe - The Lancet Child & Adolescent Health, 2017 - thelancet.com
Paediatric palliative care (PPC) endeavours to alleviate the suffering and improve the quality
of life of children with serious illnesses and their families. In the past two decades since …
of life of children with serious illnesses and their families. In the past two decades since …
Referral practices of pediatric oncologists to specialized palliative care
K Wentlandt, MK Krzyzanowska, N Swami… - Supportive Care in …, 2014 - Springer
Purpose The aims of this study are to describe the attitudes and referral practices of pediatric
oncologists (POs) to specialized palliative care (SPC), and to compare them with those of …
oncologists (POs) to specialized palliative care (SPC), and to compare them with those of …
Predictors of and trends in high-intensity end-of-life care among children with cancer: a population-based study using health services data
A Kassam, R Sutradhar, K Widger… - Journal of clinical …, 2017 - ascopubs.org
Purpose Children with cancer often receive high-intensity (HI) medical care at the end-of-life
(EOL). Previous studies have been limited to single centers or lacked detailed clinical data …
(EOL). Previous studies have been limited to single centers or lacked detailed clinical data …
